
Assisted death remains a complex and polarising issue. On one hand, proponents highlight the need to preserve dignity in dying calling for a more compassionate response to the law. Opponents object, emphasising concerns about diminishing the sanctity of human life, the risks of introducing a slippery slope, and highlighting negative impacts on the doctor-patient relationship. The debate around assisted death is staggering which begs the question: what more could be said of the problem of assisted death that has not been said 100 times over?
For Dr Rees Johnson, there is an important underlying context that is essential to future reform attempts. Dr. Johnson is a Lecturer at the Essex Law School. His research interests include end-of-life matters and the racial/cultural contexts of end-of-life care. He teaches Medical Law and Property Law. Rees recently concluded his PhD: Situating Medical Power within the Modern (Legal) History of Assisted Death: 1936 – Present.
The Research Visibility Team interviewed Dr. Rees Johnson to find out more about his thesis and research.
In layman’s terms, what is the problem your research aims to fix and how would you describe your contribution to your subject area?
My PhD was borne out of frustration. The frustration I had was with the state of the academic debate and how I felt the way the problem of assisted death was being debated. After conducting an extensive literature review, I felt that the conventional framing of assisted death as a legal and/or ethical problem created a cyclical effect. Ethical and legal discourses have been deployed to advocate reform; and yet the same ethical and legal discourses have been inverted to argue the opposite. Rinse and repeat for nearly 100 years.
Considering this circular argumentation, how could the law progress when it is hindered by uncertainty and indeterminacy? What is the function of this uncertainty and indeterminacy? Who stands to benefit from this uncertainty and indeterminacy? What strategies have been deployed to preserve this uncertainty and indeterminacy? These were some of the questions I felt needed answering.
By adopting a critical historical analysis inspired by Michel Foucault, I examined the legal history of assisted death to determine whether something else was going on beneath the conventional framing.
I came to realise that the legal developments of assisted death have been constrained by an underlying tension: the tension between preserving medical power and authority on the one hand; and subverting it on the other.
My PhD therefore mapped out the ways this tension has played out. Using a historical frame, it charted the interest-driven strategies, interpretive struggles, and discursive practices of institutional actors (judges, lawyers, academics, medical professionals etc.) as well as the impact of these on the legal development of assisted death.
If your thesis was a front-page story in a newspaper, what would be the headline?
Facing the Challenge of Medical Power: A Call for Assisted Dying Law Reform
What inspired you to delve into the intersection of law, ethics, and power dynamics within the context of assisted death?
My background is in environmental law, having done Law with Environmental Science LLB at Northumbria University in 2014 and an LLM in Sustainable Development and Environmental Regulation at Newcastle University in 2016. I wrote my LLM dissertation on the legal rights of nature and the need for a pragmatic middle-ground.
During the LLM, I was introduced to the work of Michel Foucault when I studied ‘Critical Geopolitics’ in the Politics Department at Newcastle University, following a three-month trip to Israel in 2015. This introduction changed my worldview about pretty much everything – especially the law, and the way law supports and fosters power relations to the detriment of those at the margins.
After the LLM, I received a £30,000 funding package from Newcastle University to develop a SmartBot that could write a will for the purpose of estate planning. It was here that I became interested in death and dying. This seems like an unusual trajectory, but the PhD is simply a meeting of these two worlds.
Your thesis employs a critical historiographical method inspired by Michel Foucault. What key insights does this approach offer that traditional legal and ethical frameworks might overlook?
I think adopting a method of legal analysis that moves away from concentrating on formal modes or structures of power and authority is important. Foucault teaches us to consider the underlying, subtle ways in which power is exercised that are not immediately obvious, such as through discursive practices like medicalisation and expertise. In parliamentary debates or case law on assisted dying, it is difficult to unsee how politicians and judges help to legitimise and uphold these techniques.
The methodological approach was also helpful in that it allowed for the explication of power relations inherent in the development of legal knowledge and how this unfolds over time. Legal knowledge is not neutral but historically contingent and situationally negotiated through a constellation of power relations. This helps us to adopt a more critical approach to the development of legal knowledge and legal ideas.
Your thesis suggests the need to draw a line as a matter of policy to avoid conferring too much power and authority to the medical profession in the context of assisted death. Could you elaborate on potential alternative approaches or policies that could genuinely empower patients while ensuring a balance between autonomy and medical authority? What considerations should future proposals take into account?
In my PhD, I argue that the reason the law has not changed is that current and historic proposals would undermine the status quo of medical power and authority.
The issue the medical profession has had with reforming the law is that reformers have proposed bringing in third parties, such as referees/judges, into proceedings. As long as these safeguards remain, the dominant medical culture will remain opposed where external involvement risks undermining its professional autonomy. These are too explicit terms, however. Often you will hear about the need to preserve the doctor-patient relationship which seems noble. However, the foundation of this power relationship is trust; and trust is essential to maintaining the professional autonomy of the medical profession. It is from this autonomy that the profession derives its power and authority.
To circumvent this, I drew upon the work of Suzanne Ost and Margaret Brazier to propose de-medicalising assisted death to enable people to have an assisted death beyond the grip of medical power and authority. I see no reason why assisted death needs to be within the domain of medical practice. There are important policy/social reasons why we might not want to extend the power of the profession to encompass power and authority over death itself. For that reason, I would reject the need to strike a balance between patient autonomy and medical authority.
Reflecting on your research journey, what challenges did you encounter in examining the historical contingency and power relations surrounding assisted death?
The project was a huge undertaking. The debate in Britain is nearly a century old. There have been a lot of shifts in the debate, its discourses, and the range of institutional actors that have emerged within the debate at different historical points. Trying to capture this in 80,000 words meant I had to be very selective. A lot of my ‘darlings’ had to be killed, and so learning to let certain ideas or contexts go was difficult.
The biggest hurdle was attempting to incorporate Foucauldian philosophy into an ethico-legal analysis of assisted dying. I faced difficulties trying to convince others of the value or utility of my theoretical and methodological choices especially those who have fed into the conventional frame.
My critical approach is not traditional within the bioethical intellectual space. Whilst others were saying assisted death is a legal problem, or an ethical problem, I was arguing that the frameworks of law and ethics occlude an underlying context –– that assisted death is better problematised as a problem of ideology, of power.
The preservation of medical power and authority is the root of the failure of past reform attempts. In knowing this, future reform attempts can concentrate their efforts on new points of resistance that can overcome the constraining effects of medical power and authority.
Now that you submitted your thesis, how do you plan to move forward in terms of your research?
Having examined the ways in which medical power and authority have shaped legal developments of assisted death, I am now keen to examine the other aspect of the power relationship: the patient.
I am interested in those patients who are more susceptible to the effects and constraints of medical power and authority.
Currently, I am exploring the racial and cultural contexts of assisted dying reform and how changes in the law might impact people of colour and, importantly, what we ought to do about this.



